What carers think about Mobilise

When we're caring for a loved one, it's easy to feel like we're carrying the weight of the  world on our shoulders. That's why, each year, we ask our Mobilise community about the difference Mobilise has made to our lives, so we can identify what's working and what we need to look more closely at going forward.

Looking at responses from both 2025 and 2026, one message comes through loud and clear: unpaid carers value practical information, emotional support, and above all, the reassurance that someone understands.

This year, almost 450 of us shared our experiences, allowing us to compare how carers feel about Mobilise over time. The results show consistently high satisfaction, with recommendation scores remaining exceptionally strong across both years.

Recommendation scores remain high

When asked how likely we were to recommend Mobilise to someone in a similar caring situation, we gave an average score of 8.9 out of 10 in 2025 and 8.8 out of 10 in 2026.

In 2025 three quarters of us (75%) gave Mobilise a 9 or 10. In 2026, that rose to nearly 79%. Even more encouragingly, the proportion of carers giving the highest possible score of 10 remained high:

2025:

65% gave a score of 10

2026:

70% gave a score of 10

"I don't feel alone anymore"

Across both years, the most common theme was a powerful sense of connection. Again and again, carers described feeling isolated before finding Mobilise, and supported afterwards. One carer shared:

"I always thought I was on my own. No one really understood how hard it was. When I found Mobilise it was a life changer for me. I no longer felt alone, unheard and ignored."

Another told us:

"I don't feel alone anymore. People and a place to share little wins or disappointments and hurts where I know I will be understood."

And perhaps most simply:

"Knowing you're not alone."

Some carers described how seeing other people's experiences helped them make sense of their own:

"Mobilise validates my feelings. I realise I'm not the only one feeling a certain way or having certain experiences."

"It's always good to hear that other people are going through the same as you, meaning that you are not alone."

For those of us who spend much of our time at home, caring around the clock, that sense of belonging really matters.

Information that saves time and reduces stress

While emotional support was the strongest theme, practical support ran a close second. Carers repeatedly told us that Mobilise helps them find information faster, understand benefits, and navigate complex systems. One respondent wrote:

"A single point of information saves massive amounts of time."

Another said:

"Saves lots of time as all the practical info I need is in one place. Informed and clear information."

Others highlighted specific ways Mobilise had helped them:

"It showed me how to apply for Carers Allowance."

"It has given me the push to get myself and my wife more organised with our benefits and possibilities."

Many of us described feeling overwhelmed by caring responsibilities, so having trusted information available when we need it can make a significant difference.

Community support that feels different

One of the strongest findings from both years was the value we place on speaking to people who truly understand. As one carer explained:

"When there is little support or understanding, Mobilise is there to make us feel seen and cared for."

Another wrote:

"In the hardest moments there is always someone who understands."

For many, the community provides something that family and friends simply cannot.

"Our community gets it even when our families and friends don't."

"Someone who does not mind listening to your problems. Someone who cares for you instead of being a carer for five minutes."

These comments underline that carers often spend so much time supporting others. We rarely receive support ourselves.

Cuppas, conversations and connection

Many carers specifically mentioned Mobilise's online events and Cuppas. For those unable to leave home regularly, these sessions can be vital.

"The […] cuppas have been a real lifeline for me."

Another shared:

"I have made such good friends... always have something to look forward to in the week."

And another wrote:

"As I don't drive and I struggle with travel, having an online community and the cuppas have been a lifeline for me."

These responses demonstrate the value of creating spaces where we can connect, learn and be themselves.

What carers would like next

While satisfaction remains high, carers also gave thoughtful suggestions about how Mobilise could improve. Several themes emerged across both years:

More local and face-to-face opportunities

Some of us would like more in-person support alongside online services. Suggestions included:

• Local meet-ups

• Regional support groups

• Condition-specific groups

• Opportunities to build friendships locally

Easier navigation

A number of us mentioned difficulties navigating the app or online hub. Comments included requests for:

• Simpler navigation

• Easier access to groups

• Better notifications

• More straightforward links from emails

More tailored support

Carers also asked for additional information on:

• Financial support

• Employment rights

• Rural caring

• Specific health conditions

• Parent caring

• Bereavement support

• Housing and accessibility

• 
  

These suggestions provide valuable insight into where we could provide extra support, which shapes our planning for future guides and articles and helps to inform the Carer Support Team.

Looking ahead

Comparing 2025 and 2026, the story is consistent, with recommendation scores remaining high, satisfaction strong, and carers continuing to tell us that Mobilise helps them feel less alone. One of the most powerful comments came from a carer who wrote:

"I felt lost until I discovered Mobilise. Now I feel part of a community."

It reflects everything carers reported this year: that practical information and expert guidance matter. But what we value most is knowing that someone understands, and, in a role that can often feel invisible, understanding it can make all the difference.

This is also why carers' assessments, support groups and peer communities exist. Caring can be complex, demanding and isolating, and none of us should feel we have to navigate it entirely on our own. Reaching out for support is not a sign that we're struggling; it's a recognition that caring is easier when we have the right people and services around us.

Whether it's practical help, emotional support, advice about your rights, or simply a chance to connect with others who understand, support is available. If we feel we need help, our GP, local council or local carers' support service may be a good start. And, whenever we need a listening ear, reassurance or connection with other carers, the Mobilise Hub is always open and ready to welcome us.

If you would like to share more details with us about how Mobilise makes a difference, we would love to hear it. We value all the feedback you give us and we are always on the lookout for new carer stories - they can be a powerful way to reach carers who currently aren’t supported. Contact Nicola on nicola.earle@mobiliseonline.co.uk if you would like to share your experience.